Conference in Philadelphia Pennsylvania
July 11th 2005
The FACES (Friends And Caregivers
Encephalitis Survivors) Encephalitis Conference is proud to welcome
friends old and new to attend and learn more about encephalitis, from
the people it has touched.
Encephalitis Global Inc. President Wendy Station is an encephalitis
survivor. She says, “It’s our annual time of the year to raise
awareness, and let the world know that we have a voice. So often,
problems such as encephalitis are swept under the carpet, as folks just
don’t understand… and don’t wish to take the time to understand. We
would like to change that.
Judith Ashton of Encephalitis Global Inc. and also an encephalitis
survivor adds, “Those who survive encephalitis often face a range of
serious cognitive and physical impairments. For example, some survivors
may be left with a variety of memory problems, including amnesia. Other
survivors may be left with attention and organization problems and
far-ranging difficulties in processing information. Many have speech and
language difficulties. Some experience profound fatigue and sleep
disorders. Survivors also may have a range of physical disabilities,
from paralysis to partial paralysis to significant balance and gait
problems. They may also have seizure disorders. Encephalitis may touch
anyone from young infants to elderly persons and those who survive are
likely to require extensive rehabilitation services and may or may not
regain former functional abilities to work or to live independently.
"This illness is so frustrating for some survivors and
their families because many of the disabilities we have as a result of
contracting encephalitis are not readily apparent. Thus, those who
don't know us well may not understand how difficult it may be for us
even to perform basic daily activities. A noisy environment may
trigger a seizure. We may not be able to process information quickly
enough to drive a car or perform a job. We may not be able to
concentrate long enough to do basic housekeeping activities. We may be
overwhelmed by the complications of simply writing out checks. Our
balance may be so poor that we cannot use the public transportation
Guest speakers at FACES include Elaine Dowell from The Encephalitis
Society in the United Kingdom, and Joseph Conlon, of the American
Mosquito Control Association.
“Some forms of encephalitis are transmitted by insects, including the
West Nile virus," says Wendy Station. "So often, West Nile’s most
serious impact is measured by the basic fatality count. We hope for
people to learn about the encephalitis survivors, and the struggles
they are facing. Our message is simple. We have survived. We are here.
And we are fighting back.”
FACES Encephalitis Conference will be held September 9th through 11th
2005, in Philadelphia, Pennsylvania. Visit
www.encephalitisglobal.com and click the FACES logo, for more
Wendy Station, President
Encephalitis Global, Inc.